Characteristics of Health-Preserving Behavior of Parents Raising Children with Disabilities
Research Article
Acknowledgments
The article was prepared within the framework of the state assignment of the Research Institute of Hygiene and Health Protection of Children and Adolescents of the National Medical Research Center for Children’s Health of the Ministry of Health of Russia on the topic
How to Cite
Guryanova M.P., Klochinova P.D. Characteristics of Health-Preserving Behavior of Parents Raising Children with Disabilities. DEMIS. Demographic Research. 2024. Vol. 4. No. 3. P. 88-104. DOI: https://doi.org/10.19181/demis.2024.4.3.6 (in Russ.).
Abstract
The article presents the results of a study devoted to the study of health-preserving behavior of parents raising children with disabilities aged 6-10 years. The study was conducted in April-May 2024 in the Borovsky District of the Kaluga Region. The research method was a questionnaire survey of parents. The questions touched upon the implementation of such important areas of child health-preservation in the family as home nutrition, daily routine, sleep, hygiene, control over the safe use of gadgets for the child's health, the psychological climate in the family, the attitude of parents to their own health, etc. The process of interaction between parents and a medical institution and medical workers as subjects of child health-preservation was also studied. It was found that the majority of parents (85%) fully comply with the doctor's advice and prescriptions. Most parents (68%) know the specifics of the child's disease and treatment. According to 54% of parents, their children willingly follow the doctor's recommended prescriptions. 15% of parents failed to develop the skill of following doctors' recommendations in their children with disabilities. In 30% of parents, the child does not follow the doctor's orders or follows them thanks to the parents. In every third family, the sick child's sleep schedule is not followed. Only a third of parents (31%) have children who attend exercise therapy classes. Parents have a low level of health-preserving competence in the issue of healthy nutrition. The materials of the article can be used in the work of specialists in medical and social institutions, educational and public organizations, and can also be useful for researchers interested in the problem of health preservation of children with disabilities.
Keywords:
child with disabilities, family, educational organization, medical activity of parents, health-preserving behavior of parents
References
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2. Demina, I. S. Sem’ya, vospityvayushchaya rebonka s ogranichennymi vozmozhnostyami zdo-rov'ya, kak resurs provedeniya uspeshnoy korrektsionnoy raboty [A family raising a child with disabilities as a resource for successful correctional work]. In: Rebenok v sovremennom obrazovatel’nom prostranstve megapolisa [A child in a modern educational space of a metropolis] : Proceedings of the IX All-Russian scientific and practical conference with international participation, Moscow, April 08, 2022. Moscow: News of the Institute of Pedagogy and Psychology of Education, 2022. С. 193–198. (In Russ.).
3. Rusanova, N. D. Rol’ sem’i v formirovanii zdorovogo obraza zhizni detey s OVZ : Report. Educational Portal “Prodlenka”, 08.01.2018. URL: https://www.prodlenka.org/metodicheskie-razrabotki/291253-rol-semi-v-formirovanii-zdorovogo-obraza-zhiz. (In Russ.).
4. Siminiakina, L. V. Influence of the Family on the Psychological Well-Being of a Child with Disabled Health / L. V. Siminiakina N. А. Peshkova. Sotsiokul’turnyye i psikhologicheskiye problemy sovremennoy sem’i: aktual’nyye voprosy sopro-vozhdeniya i podderzhki [Sociocultural and psychological problems of the modern family: current issues of support and assistance] : Proceedings of the VI International scientific and practical conference, Tula, November 19, 2020. Cheboksary : LLC “Sreda” Publishing House, 2020. Pp. 186–190. (In Russ.).
5. Ukleina, А. Е. The Role of The Family in the Socialization of Children with Disadilities / А. Е. Ukleina, S. А. Mukhortova, Т. V. Gorbacheva, et al. National Association of Scientists. 2021. No. 71-1. Pp. 41–43. (In Russ.).
6. Egizaryants, М. N. Rol’ sem’i v vospitanii rebenka s ogranichennymi vozmozhnostyami zdo-rov’ya [The role of the family in raising a child with disabilities] / М. N. Egizaryants, А. А. Myakinkikh. Problems of Pedagogy. 2019. No. 4(43). Pp. 67–68. (In Russ.).
7. Ivaseva, О. V. Physical Education of Children with OVI in the Family. In: Sotsial’no-ekonomicheskiye protsessy: novoye videniye, vyzovy, tendentsii [Socio-economic processes: new vision, challenges, trends] : monograph. Petrozavodsk: International Center for Scientific Partnership “New Science”, 2022. Pp. 233–259., 2022. (In Russ.).
8. Guryanova, M. P. Socio-Pedagogical Analysis of Socialization in Family of Children with Special Health and Disability / М. P. Guryanova, P. D. Klochinova, N. I. Kotova. Pedagogy. 2023. Vol. 87, No. 10. Pp. 41–50. (In Russ.).
9. Guryanova, М. P. Profilakticheskiye tekhnologii raboty spetsialistov sotsial’noy sluzhby po okazaniyu pomoshchi sem’ye v organizatsii pravil’nogo pitaniya [Preventive technologies of work of social service specialists in providing assistance to families in organizing proper nutrition] / М. P. Guryanova, Zh. Yu. Gorelova, E. V. Andreychuk, Yu. V. Solovieva. Sotsial’noye obsluzhivaniye [Social services]. 2023. No. 1. Pp. 71–80. (In Russ.).
10. Gorelova, Zh. Yu. The Possibilities of Using Modern Preventive Technologies in the Work of Specialists of Various Profiles to Assist the Family in Organizing Proper Nutrition of the Child / Zh. Yu. Gorelova, М. P. Guryanova. Medical Alphabet. 2023. № 8. Pp. 75–81. DOI 10.33667/2078-5631-2023-8-75-81. (In Russ.).
11. Gorelova, Zh. Yu. Review of Studies on the Effect of Non-Alcoholic Tonic Drinks on the Health of Children and Adolescents Conducted in the Period from 2015 to 2023 / Zh. Yu. Gorelova, М. P. Guryanova, А. М. Kurgansky. Medical Alphabet. 2023. No. 29. Pp. 28–32. DOI 10.33667/2078-5631-2023-29-28-32. (In Russ.).
12. Guryanova, М. P. Roditel'skiy kontrol’ za bezopasnym dlya zdorov’ya rebenka ispol’zovaniyem gadzhetov i sotssetey [Parental control over the safe use of gadgets and social networks for the child’s health] / М. P. Guryanova, T. P. Seppyanen, A. M. Kurgansky. Public Health Forum: Chelovek. Zdorov’ye. Okruzhayushchaya sreda [Human. Health. Environment] : Proceedings of the Republican scientific and practical conference with international participation, Minsk, June 14, 2023. Minsk: Belarusian Medical Academy of Postgraduate Education, 2023. Pp. 147–151. (In Russ.).
13. Kurgansky, A. M. Medical and Socio-Pedagogical Risks of Primary School Children Using Digital Devices: An Empirical Study / А. М. Kurgansky, М. P. Guryanova, P. I. Khramtsov. RUDN Journal of Psychology and Pedagogics. 2023. Vol. 20, No. 3. Pp. 501–525. DOI 10.22363/2313-1683-2023-20-3-501-525. (In Russ.).
14. Tkacheva, V. V. Sem’ya rebenka s ogranichennymi vozmozhnostyami zdorov’ya : diagnostika i konsul’tirovaniye [Family of a child with disabilities: diagnostics and counseling] : [manual]. Moscow: National Book Center, 2014. 149 p. ISBN 978-5-4441-0057-8. (In Russ.).
Article
Received: 24.06.2024
Accepted: 30.09.2024
Citation Formats
Other cite formats:
APA
Guryanova, M. P., & Klochinova, P. D. (2024). Characteristics of Health-Preserving Behavior of Parents Raising Children with Disabilities. DEMIS. Demographic Research, 4(3), 88-104. https://doi.org/10.19181/demis.2024.4.3.6
Section
Health, Self-Preservation Behavior, and Mortality
